Retina International

Educate. Participate. Innovate.

Retina International (RI) is a global umbrella organisation for patient-led charities and foundations who support research into rare, genetically inherited and age-related forms of retinal disease.

RI believes that education leading to participation is a key driver in successful innovation.

IRD Cost-of-Illness Studies

Click here to view the full suite of IRDCOUNTS studies on Retina International’s “Know Your Code” genetic testing advocacy portal.

Our Members

RI has 43 active members made up of patient-led voluntary groups, charities and foundations & all with the common goal of finding cures and treatments for retinal dystrophies by supporting research and innovation.


Learn more about joining our member organisation


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