| 20 September 2016

Welcome from our CEO

On behalf of Retina International I am delighted to welcome you to our Website. 

It has been a very busy period for Retina International and its members as we prepared for and celebrated International Rare Diseaes Day on February 28th. Thousands of events were held all over the world and we are learning that our members in the Retina community were particularly active. We look forward to bringing you details of the many activities that took place in late February and early March to mark its tenth year.

On March 9th, 2017 The European Reference Network for Rare Eye Disease, ERN-EYE was awarded accreditation along with 24 other disease specific Networks by the Commissioner for Health at the EU, Mr. Vytenis Andriukaitis at a ceremony in Vilnius Lithuania. 

ERN-EYE is led by Coordinator Professor Helene Dollfus who is based at the University Hospital Strasbourg, France. There are 30 Health Care Providers (Hospitals) representing 13 Member States in the ERN-EYE currently. ERNs were established to coordinate the diagnosis, care and treatment of patients living with rare and complex diseases, while also being centres for research and innovation. You can read more about ERNs in our News section.

Retina International is a patient led umbrella group of 34 active members who are committed to our core objective which is to seek a cure for Retinitis Pigmentosa, Macular Degeneration, Ushers Syndrome and all Allied Dystrophies. For almost four decades Retina International has been dedicated to establishing consensus on emerging issues that will enable all of us to advocate effectively to strengthen our collective voice at a time of great advancement in research and development. 

Welcome to our website - we hope you enjoy your visit! 


Avril Daly 


Retina International 



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