| 20 September 2016

Welcome from CEO

On behalf of Retina International I am delighted to welcome you to our  Website. This site is designed to be a fully accessible resource for our community to keep up to date with advancements in retinal research, results from clinical trials,  progress in emerging therapies and developments in health policy that affect all of us.

We are always happy to work with our members and stakeholders to develop global education and capacity building tools that will allow us to share the experiences of our community and learn from each other.

Retina International is a patient led umbrella group of 33 active members who are committed to our core objective which is to seek a cure for Retinitis Pigmentosa, Macular Degeneration, Ushers Syndrome and all Allied Dystrophies. For almost four decades Retina International has been dedicated to establishing consensus on emerging issues that will enable all of us to advocate effectively to strengthen our collective voice at a time of great advancement in research and development. 

We want to hear from you!

If you are interested in contributing to this site through blog posts, articles or through sharing information on the work of your organisation or if you have any news and events you wish to publicise, please contact me  avril.daly@retina-international.org

We also encourage you to participate in on going surveys designed by Retina International and our members to help us develop appropriate tools for education and advocacy purposes. If you are a person, parent or have a family member affected by an Inherited Retinal Disease (IRD) why not share your experince on accessing a genetic test in you country by particpating in our latest patient survey, just click the link below

http://www.retina-international.org/we-want-hear-you

Avril Daly 

CEO 

Retina International 

 

 

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