| 11 October 2018

World Sight Day 2018 - #EyeCareEverywhere


On October 11th 2018, we celebrate World Sight Day, an annual day of awareness held on the second Thursday of October to focus global attention on blindness and vision impairment. The theme of World Sight Day 2018 (WSD2018) is Universal Eye Health and this year's ‘Call to Action’ is EYE CARE EVERYWHERE.


| 11 October 2018

Genetic testing for IRDs varies widely across the RI membership

In order to understand the current status of the genetic testing pathway for IRD patients, we asked our members what the experiences are in their countries. Nine respondents from both EU and non-EU countries revealed disparities in test type availability, access and payment options. (Italy, Austria, Poland, Germany (two replies), Ireland, Iceland, Brazil, South Africa).

| 24 September 2018

Luxturna, the first treatment option for hereditary retinal dystrophy with mutations of the RPE65 gene, recommended for approval by the European Medicines Agency


Inherited retinal diseases are forms of blindness where vision problems appear in children or young adults and can progress to total loss of sight. They are a collection of diseases that can be caused by one of over 200 known genes. The mutations of the RPE65 gene, which encodes one of the enzymes involved in the biochemistry of light capture by the cells of the retina, hinder the patient’s ability to detect light. It is a severely debilitating disease, characterised by a progressive loss of vision. Most patients will be blind by the time they are young adults.

| 20 July 2018

Advocacy News from FFB: The Faster Treatments and Cures for Eye Diseases Act

Foundation Fighting Blindness USA strongly supports a bipartisan bill introduced late Wednesday, July 18, 2018 in the U.S. House of Representatives that holds enormous promise for saving and restoring the vision of the 4 million adults and almost half-a-million children in the U.S. who are blind or have severely impaired vision from a variety of eye diseases and conditions, including inherited retinal diseases and age-related macular degeneration.

| 12 July 2018

Altered bioenergetics and enhanced resistance to oxidative stress in human retinal pigment epithelial cells from donors with age-related macular degeneration 01/06/17

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