| 02 November 2018

Retina International Launch IRD Educational Toolkit to improve understanding of Inherited Retinal Diseases


Dublin: 2nd November, 2018. A global community of patients and representative groups concerned with inherited blindness today launched www.retina-ird.org

The toolkit is designed to be a central information hub bringing patients, their representatives, health care providers and policy makers the most up-to-date information on the various forms of Inherited Retinal Diseases.

| 24 September 2018

World Retina Day 29th september 2018

The Global Retina Community Calls for Action on Access to Genetic Testing Services for Inherited Retinal Degenerations on World Retina Day 2018

On September 29th 2018, the global retinal community of patients, clinicians, scientists and allied health professionals will mark World Retina Day with a call for action by national health care systems, to provide equitable access to genetic testing services for Inherited Retinal Degenerations – IRDs.

| 20 July 2018

Advocacy News from FFB: The Faster Treatments and Cures for Eye Diseases Act

Foundation Fighting Blindness USA strongly supports a bipartisan bill introduced late Wednesday, July 18, 2018 in the U.S. House of Representatives that holds enormous promise for saving and restoring the vision of the 4 million adults and almost half-a-million children in the U.S. who are blind or have severely impaired vision from a variety of eye diseases and conditions, including inherited retinal diseases and age-related macular degeneration.

| 18 April 2018

New Team Member at Retina International


Retina International is delighted to announce the appointment of Sarah McLoughlin as Science Communication Officer.

Sarah will be working on the implementation of RI’s communications strategy where she will play a key role in one of the organisations primary objectives: delivery of the latest information on relevant developments in research and innovation to members and stakeholders.

| 06 April 2018

Retina International Supports World Health Day - April 7, 2018


On World Health Day 2018, April 7th, the World Health Organization marks its 70th anniversary. Over the past seven decades, WHO has spearheaded efforts to rid the world of diseases like smallpox and to fight against deadly habits like tobacco use.

In 2018 World Health Day is dedicated to one of WHO’s founding principles:

 “The enjoyment of the highest attainable standard of health is one of the fundamental rights of every human being without distinction of race, religion, and political belief, economic or social condition.”

| 06 April 2018

ERN-EYE Annual General Meeting - Tallinn

The ERN-EYE organized its third meeting on March 26th to 27th in Tallinn, Estonia. The Annual General Meeting was attended by 60 people from Health Care Providers (HCP) from the 13 member countries in the network, as well as invited speakers.

| 13 February 2018

Foundation Fighting Blindness and ProQR enter into partnership for Usher's Type 2A

Foundation Fighting Blindness will provide up to $7.5 million in funding to develop ProQR’s candidate QR-421a for Usher syndrome type 2A 12

Foundation Fighting Blindness and ProQR have entered into a partnership to develop QR-421a for Usher syndrome type 2A, targeting mutations in exon 13 of the causative USH2A gene. Foundation Fighting Blindness will provide milestone-based co-funding of up to $7.5 million to ProQR to advance the program into the clinic. QR-421a received orphan drug designation from the FDA.

| 04 January 2018

Spark Therapeutics INC announce models of patient access to LUXTURNA

On Wednesday January 3rd 2018,  Spark Therapeutics INC announced a series of payment models designed to help the process of patient access to its new gene therapy LUXTURNA in the United States, which is the only country where the once in a lifetime therapy is currently approved.  The company also announced the cost of the treatment.

| 11 October 2017

Study shows -Avoidable Blindness -Set to Increase in Future

On World Sight Day, eye care organisations around the world take note of new data that shows that global eye care efforts are at serious risk of being overwhelmed—unless we act now.

New data published in the Lancet Global Health shows that decades of declining “avoidable blindness”—those with uncorrected refractive errors and cataract—is plateauing, and is projected to increase between 2015 and 2050.

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