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Retina International Introduces Itself

Retina International (formerly known as the International Retinitis Pigmentosa Assoc. - IRPA) is  a voluntary charitable umbrella association of 33 national societies each of which is created and run by people with Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies, their families and friends.

The main objective should be to promote the search for a treatment for Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies. Main emphasis should be given to inherited forms of retinal dystrophies.

Under the terms of this objective, the following will be the functions of Retina International:

To promote and stimulate research into Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies, especially by keeping in touch with scientific developments around the world and doing all in its power to foster co-operation and co-ordination among scientists with a view to expediting the development of treatments for Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies.

To promote on an international and inter-Foundation basis, what the National Foundations provide on a national and inter-member basis; i.e. mutual support and encouragement in the struggle against Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies.

To promote public awareness and provide information on Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies through maintenance of a high degree of international contact and exchange of literature and other useful material.

To promote the establishment of societies of persons with retinal degenerations in countries in which such societies do not already exist.

Retina International was created by the member societies to help them achieve their purposes. The main method of doing so is the exchange of ideas and information, both lay and scientific, and the encouragement of co-operation among member societies. Retina International also represents the member societies collectively to supranational organisations.