Welcome to Retina International

    Retina International welcomes EMA's approval of voretigene neparvovec (Luxturna), a gene therapy for the treatment of LCA, in Europe

    What We Do

    For almost 40 years, Retina International (RI) has been the voice of patient-led voluntary groups, charities and foundations world wide who fund and support Retinal Research that is seeking a cure for Retinitis Pigmentosa (RP), Macular Degeneration, Ushers Syndrome & Allied Retinal Dystrophies.


    We represent the voice of patient living with Retinal Dystrophies Globally in the development of policies that affect them.


    Researchers all over the world are investigating and identifying the causes of and potential cures for conditions causing Retinal Dystrophies, with the intention of developing treatments and, ultimately, cures.


    RI works hard to empower patients living with Retinal Dystrophies through education and capacity building projects and by providing support to emerging groups. Working together we can learn a lot.

    Patient Information

    Learn more about your eyes and the many inherited, rare and genetic forms of sight loss as well as age related and common diseases of the Retina.

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    Become a Member

    Learn how you can become a member of our community

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