Welcome to Retina International

Retina International (RI) is a patient-led, global, umbrella NGO for patient-led groups around the world focused on research and support for rare and common retinal diseases.


For almost 40 years, Retina International (RI) has been the voice of patient-led voluntary groups, charities and foundations world wide who fund and support Retinal Research that is seeking a cure for Retinitis Pigmentosa (RP), Macular Degeneration, Ushers Syndrome & Allied Retinal Dystrophies.

Retina International World Congress 2020

The upcoming Retina International World Congress will be held in Reykjavík, Iceland, 4-6 June 2020. Being part of a Retina International World Congress is an educational and inspirational experience. The RIWC is a bi-annual conference which serves to gather the worlds most renowned and dedicated scientists and clinicians to meet with global advocates and patients, to encourage cooperation between all parties and develop therapies and cures for the inherited and multifactorial retinal dystrophies.

Registration is now open on the official RIWC 2020 website.

Inherited Retinal Disease Toolkit

Learn more about IRDs

AMD Toolkit

Learn more about AMD

DED Toolkit

Learn more about DEDs

Patient Information

We are committed to keeping you informed and up to date with the most recent progress in research, clinical trial outcomes and healthcare policy. We encourage you to explore our website and the resources established to educate and support people living with retinal conditions as well as those recently diagnosed.

Learn more about Patient Empowerment ►

Our Members

RI has 43 active members made up of patient-led voluntary groups, charities and foundations & all with the common goal of finding cures and treatments for retinal dystrophies by supporting research and innovation.

Learn more about joining a Member Organisation ►

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Retina International
Ausstellungsstr. 36
8005 Zurich

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This site has been supported through an unrestricted educational grant from Novartis

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